As they addressed the difficulties of providing care for a loved one who suffers from dementia, Emma Heming, the wife of actor Bruce Willis, had a profound discussion with Ty Lewis, who is employed by dementia coach Gertrude Jordan. The topic of their chat was the problems of providing care. Early in the year 2023, Heming’s superstar husband was given a diagnosis of frontotemporal dementia. She quickly sought instruction on how to negotiate the enormous burden of caring for someone with a medical condition in order to avoid suffering caregiver burnout.
During the course of the video discussion that took place on Instagram, Heming discussed the propensity for caretakers to “over function” while everyone else around them “under functions.” She confessed that it was difficult for her to seek for assistance from other people and/or transfer part of her responsibilities.
However, Lewis offered sound counsel and indicated that Heming should make it possible for members of her community to help her with some chores and take on other roles. For instance, she might delegate other individuals to transport Willis to his doctor’s appointments or spend time with him so that Heming can concentrate on taking care of herself.
The mother of two children also discussed the challenges she has when dealing with acquaintances or family members who are uncomfortable socializing with her spouse as a result of his disability. Heming admitted that for those who lacked experience with the illness, it may be “tricky” to run into a person they knew who had relocated to a different state.
Heming and the rest of Willis’ family made the decision to announce his forced retirement from acting in March 2022 owing to aphasia, a linguistic ailment that had a major impact on Willis’ capacity to speak properly. However, Willis’ health began to deteriorate around the beginning of 2023, and he was eventually diagnosed with frontotemporal dementia. Frontotemporal dementia is a degenerative brain ailment that affects both the frontal and temporal lobes of the brain. According to the Alzheimer’s Association, this disorder may cause a variety of symptoms, some of which include changes in personality, difficulty with communication, and motor or muscular deficits.
The increasing difficulties of taking care of Willis as his sickness progressed highlighted how difficult it was to become his caregiver. Heming shared how she begins each day with an attitude of thankfulness and then focuses on her long-term objectives and top concerns in order to have a healthy, optimistic outlook on life. She highlighted how important it was to refrain from concentrating on negative thoughts or the difficulties that they were facing. She also engaged in a variety of other pursuits in her spare time when she was not providing care for someone.
“You know, there are times when I really struggle. When Lewis asked Heming how he was doing, Heming said, “It just depends.” She said, “I’m hanging in there and doing the best that I can,” and that’s exactly what she was doing.
Hemming said in a post she made on social media over the previous summer that her sadness over Willis’ health “can be paralyzing,” but that she is “learning how to live alongside it.” On the other hand, her persistent internet engagement to keep Willis’ followers and friends informed about his condition was seen as attention-seeking behavior by others.
In response to her detractors, Heming said that she has made it her life’s work to educate the general public about aphasia and frontotemporal dementia. In addition, she has vowed to make use of her platform in order to shine light on her husband’s condition and bring attention to the crucial part that carers play in their loved ones’ lives. According to E! News, she said that she is resolute in channeling her feelings of loss, rage, and despair into something constructive.
“I’m going to take my five minutes and I’m going to turn it into ten because I’m always going to advocate for my husband,” Heming said. “I’m going to take my five minutes and I’m going to turn it into ten.”
Willis is Heming’s husband, and they have been married since 2009. Maybel and Evelyn are their two small kids together, and Heming is also close to Willis’ three adult daughters from his previous marriage to Demi Moore: Rumer, Scout, and Tallulah Willis. Heming’s support has received public endorsement from his elder daughters, as well as from Moore.